October Newsletter

October 27th, 2008 by cure4lupus

Check out our October Newsletter at: http://cure4lupus.org/newsletters/newsletter1008.htm

Features Include:
Get Out the Vote
Fundraiser for Lupus Groups
2008 Ornaments
REACH Amendments
Lupus Research News
Stem Cell Research News
New & Updated Pages

Support me as I “walk”

August 15th, 2008 by cure4lupus

Although I am not physically able to walk in the second annual Iowa Walk for Lupus Now, I am still very passionate about the mission of the Lupus Foundation of America, so I am participating as a virtual walker and committee member.

This organization works to fund Lupus research, support Lupus patients, and raise Lupus awareness. This year’s walk will take place on September 13th at Gray’s Lake in Des Moines, IA. I would like to invite you to help support us in fighting Lupus by sponsoring me with a donation. Click the link below to visit my page:

https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=272038&lis=0&kntae272038=FA91F2962504479BB04BBD0F4718C712&supId=185223504 

Kendra Isola
webmaster@cure4lupus.org

May Newsletter

May 12th, 2008 by cure4lupus

http://cure4lupus.org/newsletters/newsletter508.htm

Topics Include:

Lupus Awareness Month
Memsaic Wall
Celebrities & Lupus
Our Website Colors
Lupus Research News
Stem Cell Research News
New & Updated Pages

Lupus & Tattoos

April 22nd, 2008 by cure4lupus

One of the most common questions we receive is inquiring whether it is "ok" for people with Lupus to get a tattoo.

The Lupus Foundation of America has this to say about the subject:

"There are no specific problems that have been associated with tattoos in lupus patients. Keep in mind the small risk of infection with hepatitis B and C. Occasionally lupus patients have been known to have a reaction to the tattoo dye but this is very rare. Remember, if you are on immunosuppressive medication, this may increase the chances of infection and slow healing of the tattoo area. As with other procedures, it is best done when you are in remission or a welled controlled mild disease state. Consult with your physician prior to getting your tattoo."

Also, if you are on blood thinners you may not be able to sit for long sessions. The longer someone is being tattooed, the more the skin is irritated and the more they bleed, pushing the pigment back out in spots. This does not apply to small tattoos (under 1 hour) or to black and gray tattoos.

Kendra has thought about getting a tattoo for many years but was afraid of the pain and healing time. For her 30th birthday in January 2008 she decided to go for it. She wanted to get a tattoo that represented her passion and work for the Lupus Awareness Cause so she chose a purple butterfly carrying a purple ribbon. To add dimension a second color was added to the butterfly. A blueish teal was chosen in honor of Kendra’s sister who has Scleroderma.

Kendra having Lupus and Fibromyalgia was nervous about the pain, however found the entire process to be only slightly painful, perhaps comparable to a shallow sting. Kendra is also on immunosuppressives and was very diligent about aftercare. The tattoo healed up perfectly with no infection or complication within 1 week. Since getting the tattoo, we have gotten several compliments and even a few very flattering copies. Email us pictures of your Lupus tattoo to webmaster@cure4lupus.org. View Kendra’s tattoo here: http://cure4lupus.org/information/lupus_&_tattoos.htm

April Newsletter

April 20th, 2008 by cure4lupus

View April’s Newsletter here: http://cure4lupus.org/newsletters/newsletter408.htm

World Lupus Day

Invite Us to Your Event

New Products

New & Updated Pages

Lupus Reasearch News

Stem Cell Research News

Join Our Team

August 10th, 2007 by cure4lupus

We are participating in the first annual Iowa Walk for Lupus Now because our family & countless other families have been deeply affected by Lupus. Please support us in raising money to support the Lupus Foundation of America, Iowa Chapter.

Their mission is to improve the diagnosis & treatment of Lupus, support those affected by the disease, increase awareness among health professionals & the public, & find the cause & a cure.

We are asking all of our supporters to support us with a donation to sponsor us or you can even join our team and walk virtually!

To make a donation to our team you can Visit our Team Page and click on General Team Donation at the top.

To Join our Team and Help us Raise Money for Lupus awareness, and research, Visit our Team Page and click on Join our Team at the top.

Our Team page is located at: http://lupusia.walk.kintera.org/faf/search/searchTeamPart.asp?ievent=243852&lis=1&kntae243852=B3194AAB268A43BE944B0B9B56BEFB2D&team=2043187

Kendra Isola
Cure4Lupus.org Webmaster
Webmaster@Cure4Lupus.org

New this week…(ending 6/19)

June 20th, 2007 by cure4lupus

This week’s Media Campaign pick was Newsweek Magazine

Lupus Poetry & Humor - Finding Lesa…, A Little Peace of Mind.

Lupus in the News - Buy the July issue of Ebony Magazine to show your support for the article on pg. 142 titled "Living with Lupus"

Lupus Products - New: Survivor Photo Frame, Foam Butterfly Photo Frame, Lupus Awareness Jr. Tank Tops:15 designs, Photo Holder, Lupus Awareness Mousepads:14 designs, Lupus Awareness Office Decor, Cure Lupus Canister. Updated: Checkbook Cover, Credit Card Holder. Also, we are doing more EBay auctions.

Lupus Research News:
http://cure4lupus.org/news/07/news_061707.htm

Stem Cell Research News:
http://cure4lupus.org/news/sc07/scnews_061807.htm
http://cure4lupus.org/news/sc07/scnews_061507.htm
http://cure4lupus.org/news/sc07/scnews_061407_4.htm
http://cure4lupus.org/news/sc07/scnews_061407_3.htm
http://cure4lupus.org/news/sc07/scnews_061407_2.htm
http://cure4lupus.org/news/sc07/scnews_061407.htm
http://cure4lupus.org/news/sc07/scnews_061207_2.htm
http://cure4lupus.org/news/sc07/scnews_061207.htm

New this week…(ending 6/12)

June 12th, 2007 by cure4lupus

This week’s Media Campaign pick was Health Magazine

We are back this week with a whole new site re-vamp. We have all new colors and graphics, lots of new products coming in the next couple days, and much more!

Find Us On…

Universal Health Care - added a new sample letter and info on "Sicko"

Lupus in the News - American Baby Magazine

Lupus Products - New: Foam, My Lupus Journal, also we are doing more EBay auctions.

Lupus Research News:
http://cure4lupus.org/news/07/news_053107_3.htm
http://cure4lupus.org/news/07/news_053107_2.htm
http://cure4lupus.org/news/07/news_053107.htm

Stem Cell Research News:
http://cure4lupus.org/news/sc07/scnews_061107_4.htm
http://cure4lupus.org/news/sc07/scnews_061107_3.htm
http://cure4lupus.org/news/sc07/scnews_061107_2.htm
http://cure4lupus.org/news/sc07/scnews_061107.htm
http://cure4lupus.org/news/sc07/scnews_061007_6.htm
http://cure4lupus.org/news/sc07/scnews_061007_5.htm
http://cure4lupus.org/news/sc07/scnews_061007_4.htm
http://cure4lupus.org/news/sc07/scnews_061007_3.htm
http://cure4lupus.org/news/sc07/scnews_061007_2.htm
http://cure4lupus.org/news/sc07/scnews_061007.htm
http://cure4lupus.org/news/sc07/scnews_060907.htm

New this week…(ending 5/22)

May 22nd, 2007 by cure4lupus

This week’s Media Campaign pick was Anderson Cooper 360

Glossary of Lupus Terms - -itis, arteritis, peritoneal cavity, tinnitus.

Lupus Stories - Jeani’s Story

Lupus Videos - ALR Faces of Lupus Video Added.

Celebrities & Lupus

Lupus Symptoms - Peripheral Neuropathy, Gastrointestinal Tract, Arteritis of the Large Intestine, Ascites, Chronic Diarrhea, Dysphagia, Hepatomegaly, Nausea & Vomiting, Autoimmune Inner Ear Disease (AIED), and Splenomegaly.

Lupus in the News

SLE Genetic Studies - NIEHS Study

Online Studies - National Databank for Rheumatic Diseases

Lupus Products - New: Lupus Awareness Car Decorations Page, Lupus Awareness Home Decorations Page, Purple Awareness Ribbon Products Page, 12 Lupus Awareness Journals.

Events Calendar - Long Island Walks w/ Us, June 10; Denver Walks w/ Us, Sept. 29; Dallas Walks w/ Us, Sept. 29; New York City Walks w/ Us, Oct. 13; Washington D.C. Walks w/ Us, Nov. 3; San Francisco Walks w/ Us, Nov. 3; Houston Walks w/ Us, Nov. 17.

Lupus Research News:
http://cure4lupus.org/news/07/news_lribiomarker.htm

Stem Cell Research News:
http://cure4lupus.org/news/sc07/scnews_051607.htm
http://cure4lupus.org/news/sc07/scnews_051607_2.htm
http://cure4lupus.org/news/sc07/scnews_051607_3.htm
http://cure4lupus.org/news/sc07/scnews_051707.htm
http://cure4lupus.org/news/sc07/scnews_051707_2.htm
http://cure4lupus.org/news/sc07/scnews_051807.htm
http://cure4lupus.org/news/sc07/scnews_051807_2.htm
http://cure4lupus.org/news/sc07/scnews_051907.htm
http://cure4lupus.org/news/sc07/scnews_051907_2.htm
http://cure4lupus.org/news/sc07/scnews_052107.htm
http://cure4lupus.org/news/sc07/scnews_052107_2.htm

New this week…(ending 5/14)

May 15th, 2007 by cure4lupus

This week’s Media Campaign pick was Dateline

Lupus Poetry & Humor - Now, & I am not this body.

Lupus Stories - Lisa’s Story, & updated Kendra’s Story (updated)

Lupus Products - New: Purple Ribbon Guardian Angel Pin, Purple Ribbon Survivor Bracelet, Purple Ribbon Heart Locket, Purple Ribbon Flag, Purple Ribbon Garden Flag, Purple Ribbon Watch. Price Reduced - Purple Antenna Topper, Purple Butterfly Italian Charm, Purple Ribbon Italian Charm, Purple Ribbon Charm Post Earrings, Purple Ribbon Charm Wire Earrings.

Stem Cell Research News:
http://cure4lupus.org/news/sc07/scnews_050807.htm
http://cure4lupus.org/news/sc07/scnews_050807_2.htm
http://cure4lupus.org/news/sc07/scnews_050807_3.htm
http://cure4lupus.org/news/sc07/scnews_050807_4.htm
http://cure4lupus.org/news/sc07/scnews_050807_5.htm
http://cure4lupus.org/news/sc07/scnews_050907.htm
http://cure4lupus.org/news/sc07/scnews_051007.htm
http://cure4lupus.org/news/sc07/scnews_051107.htm
http://cure4lupus.org/news/sc07/scnews_051207.htm
http://cure4lupus.org/news/sc07/scnews_051407.htm